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Katydid and Kid: Sewn Paper Halloween Bunting

Katydid and Kid: Sewn Paper Halloween Bunting

By Beth Stebner Published: 00:13, 28 April 2012 | Updated: 13:13, 29 April 2012 102View commentsParents Mike and Laura Canahuati received heart-wrenching news only weeks ago - that their five-month-old daughter Avery has only months to live.Doctors diagnosed their baby girl with Type 1 spinal muscular atrophy, the most severe kind, and gave her only 18 months to live.Rather than bemoan their tragic circumstances, the young couple decided to make a blog called Avery’s Bucket List, in which Mr Canahuati writes in his daughter’s voice and chronicles everything she’s done on her so-called bucket list.Scroll down for video and bucket listBucket list: Little Avery Canahuati was diagnosed with Type 1 spinal muscular atrophy on Good Friday and given only 18 months to live Avery's list: The child's father Mike has been keeping a lengthy list of all the things Avery wants to do before she dies - including eating junk food, left, and wearing a big bow, right Happier days: Avery was born on November 11, 2011, one of many 11-11-11 babies; she's pictured with proud parents Laura and MikeThe blog, written in Avery’s voice, contains milestones that most every American child will pass in the time they’re growing up – including meeting Santa, Avery’s blog has become something of an internet sensation – the website alone has garnered more than half a million page views, and her Facebook page has more than 12,000 ‘likes.’Avery ‘wrote’ on her blog: ‘I have a lot of living to do in just a little bit of time and I’m going to need all of the help I can get from my parents and anyone else who wants to help.‘Keep in mind in everything I do, the two most important things are that I’m spending time with my mommy & daddy, while at the same time spreading awareness for SMA.’Four-legged friend: Some of the readers of Avery's Bucket List suggested the smiling girl play with a newborn puppy Nearly there: One of Avery's things to do includes meeting Santa. With this outfit, she's on the right trackFun with mom: Another reader suggested sliding down a slide; in another, Avery is pictured with a plush giraffe stuffed toyThe initial bucket list includes several childhood milestones, such as going swimming, going on a road trip, sit on daddy’s shoulders, have a birthday party, and stay up past my bedtime watching TV with mommy and daddy.One of goals on the list was a little more salacious: Get a tattoo.The cheery blog has struck a chord with parents across the world. Mrs Canahuati told Good Morning America that’s when the couple knew they had a powerful platform on which to speak.The mother said: ‘When we saw how many people it was reaching in a few days, that’s when we realised we could really get the word out on SMA and spread the word as much as we could.’The disease is the number one killer of U.S. children under two, she said, though the disease is largely unknown.She urged possible parents to get tested for the genetic disease before conceiving. ‘Our goal for Avery is to be the face of SMA,’ she said.For more information on SMA, or to donate to the cause, please visit:Fight SMA (www.fightsma.org)Muscular Distrophy Association (www.mda.org)Or send donations to:Avery's Bucket ListPO BOX #2849Bellaire, TX 77402Wrap my arms around my mommy & daddyGive my mommy & daddy a big kissSwim w/dolphinsGo tubing down a riverPaint a picture for my mommy & daddyReach my 5-month birthdayGo on a road tripThrow a party and invite all my friends & familySwing on my swingsetPlay dress up and wear all the clothes in my closet and have a photo shootPlay dress up in my mommy's closet and have a photo shootGo swimmingBe a cheerleaderGo to San Diego and visit the ZooAttend a birthday partyAttend a sleepoverStay up past my bedtime watching TV with my mommy & daddySleep in my mommy & daddy's bed because I was afraid of the boogeyman in my closetSit upGo hikingGo camping & make s'moresMake cupcakesBake with my Tia KristySit on my daddy's shouldersLounge by the pool reading trash magazinesGet a mani/pediGo to a waterparkRead a bookHave a drink with mommy & daddyGet a massageRide a bicycleGo roller skatingBe potty trainedPlay hide & seek Have a birthday partyHave as many birthday parties as people want to have with meCelebrate my real 1st birthdayGo to the movies in my pajamasWatch the Polar ExpressGo kayakingMake a lemonade standGet my drivers licenseGo huntingGo bowlingMake college visits with my mommy & daddyLearn to typeGo to the beachVisit my Nana & G-Pa in New BraunfelsGo to a concertLearn to play an instrumentSing karaokeGo to an AquariumVisit where my mommy & daddy first metPlay pokerGet a present in the mailDanceGo on a boatLose my first tooth and get a present from the tooth fairyMeet Santa ClausDress up for Halloween and go trick or treatingGet a tattooHave a father daughter dance while watching Father of The BrideHave a tea partyHave an even BIGGER tea partyBlow bubbles with my mommy and daddyRide in a convertible and feel the wind in my hairGo take pictures in the bluebonnetsGive butterfly and eskimo kisses Share what you think The comments below have not been moderated. The views expressed in the contents above are those of our users and do not necessarily reflect the views of MailOnline. We are no longer accepting comments on this article.Published by Associated Newspapers LtdPart of the Daily Mail, The Mail on Sunday & Metro Media Group



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